Health outcomes for children with neurodisability: what do professionals regard as primary targets?

2.50
Hdl Handle:
http://hdl.handle.net/11287/593845
Title:
Health outcomes for children with neurodisability: what do professionals regard as primary targets?
Authors:
Janssens, A.; Williams, J.; Tomlinson, Richard; Logan, Stuart; Morris, Christopher
Abstract:
AIM: To identify what aspects of health clinicians target when working with children with neurodisability, and which might be appropriate to assess the performance of health services. METHOD: Health professionals were recruited through child development teams and professional societies in England. Professionals participated in four rounds of an online Delphi survey. Open questions were used to elicit aspects of health; these were coded using the WHO International Classification of Functioning, Disability and Health for Children and Youth. Then, participants were asked to rate their agreement with statements to prioritise outcomes identified. RESULTS: Responses to all four rounds were, respectively: 233/276 (84.4%), 232/286 (81.1%), 227/285 (79.6%) and 191/284 (67.3%). The key outcome domains identified were: mental health, confidence/emotional stability, anxiety/attention, sleep, pain, toileting, movement ability, manual ability, acquiring skills, communication, mobility, self-care, recreation and leisure. Participants rated both functioning and well-being in these aspects of health as equally important. INTERPRETATION: This Delphi survey identified nine key domains that provide a professional perspective on a core set of outcomes for evaluating services for children and young people with neurodisability.
Citation:
Arch Dis Child. 2014 Oct;99(10):927-32.
Publisher:
BMJ
Journal:
Archives of disease in childhood
Issue Date:
1-Oct-2014
URI:
http://hdl.handle.net/11287/593845
DOI:
10.1136/archdischild-2013-305803
PubMed ID:
24854564
Additional Links:
http://adc.bmj.com/cgi/pmidlookup?view=long&pmid=24854564
Note:
RD&E staff can access the full-text of this article by clicking on the 'Additional Link' above and logging in with NHS OpenAthens if prompted.
Type:
Journal Article; Research Support, Non-U.S. Gov't
Language:
eng
ISSN:
1468-2044
Appears in Collections:
2014 RD&E publications; Paediatrics; Honorary contracts publications

Full metadata record

DC FieldValue Language
dc.contributor.authorJanssens, A.en
dc.contributor.authorWilliams, J.en
dc.contributor.authorTomlinson, Richarden
dc.contributor.authorLogan, Stuarten
dc.contributor.authorMorris, Christopheren
dc.date.accessioned2016-01-19T12:35:41Zen
dc.date.available2016-01-19T12:35:41Zen
dc.date.issued2014-10-01en
dc.identifier.citationArch Dis Child. 2014 Oct;99(10):927-32.en
dc.identifier.issn1468-2044en
dc.identifier.pmid24854564en
dc.identifier.doi10.1136/archdischild-2013-305803en
dc.identifier.urihttp://hdl.handle.net/11287/593845en
dc.description.abstractAIM: To identify what aspects of health clinicians target when working with children with neurodisability, and which might be appropriate to assess the performance of health services. METHOD: Health professionals were recruited through child development teams and professional societies in England. Professionals participated in four rounds of an online Delphi survey. Open questions were used to elicit aspects of health; these were coded using the WHO International Classification of Functioning, Disability and Health for Children and Youth. Then, participants were asked to rate their agreement with statements to prioritise outcomes identified. RESULTS: Responses to all four rounds were, respectively: 233/276 (84.4%), 232/286 (81.1%), 227/285 (79.6%) and 191/284 (67.3%). The key outcome domains identified were: mental health, confidence/emotional stability, anxiety/attention, sleep, pain, toileting, movement ability, manual ability, acquiring skills, communication, mobility, self-care, recreation and leisure. Participants rated both functioning and well-being in these aspects of health as equally important. INTERPRETATION: This Delphi survey identified nine key domains that provide a professional perspective on a core set of outcomes for evaluating services for children and young people with neurodisability.en
dc.language.isoengen
dc.publisherBMJen
dc.relation.urlhttp://adc.bmj.com/cgi/pmidlookup?view=long&pmid=24854564en
dc.titleHealth outcomes for children with neurodisability: what do professionals regard as primary targets?en
dc.typeJournal Articleen
dc.typeResearch Support, Non-U.S. Gov'ten
dc.identifier.journalArchives of disease in childhooden
dc.description.noteRD&E staff can access the full-text of this article by clicking on the 'Additional Link' above and logging in with NHS OpenAthens if prompted.en

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