Ten years of the national genetic diabetes nurse network: a model for the translation of genetic information into clinical care

2.50
Hdl Handle:
http://hdl.handle.net/11287/593862
Title:
Ten years of the national genetic diabetes nurse network: a model for the translation of genetic information into clinical care
Authors:
Shepherd, Maggie ( 0000-0003-2660-0955 ) ; Colclough, Kevin; Ellard, Sian ( 0000-0002-7620-5526 ) ; Hattersley, Andrew T.
Abstract:
Increasing technological advances have resulted in the recognition of a range of genetic conditions not traditionally seen by clinical genetics teams. This has implications for the education of other healthcare professionals who may have insufficient knowledge to identify or support families with these conditions. The national genetic diabetes nurse (GDN) project, which trains diabetes specialist nurses (DSNs), was started in 2002 to increase awareness of monogenic diabetes among healthcare professionals across the UK. This paper describes the development and evaluation of the first 10 years of this project, indicating that GDNs have increased diagnostic referral rates and supported local families through diagnosis and treatment changes across the UK. The GDN project has proved an effective, innovative means of disseminating new genetic information from a centre of excellence and is suggested as a model for the successful and rapid dissemination of genetic information into routine clinical care in other conditions.
Citation:
Clin Med. 2014 Apr;14(2):117-21.
Publisher:
Clinical Medicine
Journal:
Clinical medicine
Issue Date:
1-Apr-2014
URI:
http://hdl.handle.net/11287/593862
DOI:
10.7861/clinmedicine.14-2-117
PubMed ID:
24715120
Additional Links:
http://www.ncbi.nlm.nih.gov/pubmed/24715120
Type:
Journal Article
Language:
eng
ISSN:
1470-2118
Appears in Collections:
2014 RD&E publications; Diabetes/Endocrine Services; Molecular Genetics; Honorary contracts publications

Full metadata record

DC FieldValue Language
dc.contributor.authorShepherd, Maggieen
dc.contributor.authorColclough, Kevinen
dc.contributor.authorEllard, Sianen
dc.contributor.authorHattersley, Andrew T.en
dc.date.accessioned2016-01-19T12:35:54Zen
dc.date.available2016-01-19T12:35:54Zen
dc.date.issued2014-04-01en
dc.identifier.citationClin Med. 2014 Apr;14(2):117-21.en
dc.identifier.issn1470-2118en
dc.identifier.pmid24715120en
dc.identifier.doi10.7861/clinmedicine.14-2-117en
dc.identifier.urihttp://hdl.handle.net/11287/593862en
dc.description.abstractIncreasing technological advances have resulted in the recognition of a range of genetic conditions not traditionally seen by clinical genetics teams. This has implications for the education of other healthcare professionals who may have insufficient knowledge to identify or support families with these conditions. The national genetic diabetes nurse (GDN) project, which trains diabetes specialist nurses (DSNs), was started in 2002 to increase awareness of monogenic diabetes among healthcare professionals across the UK. This paper describes the development and evaluation of the first 10 years of this project, indicating that GDNs have increased diagnostic referral rates and supported local families through diagnosis and treatment changes across the UK. The GDN project has proved an effective, innovative means of disseminating new genetic information from a centre of excellence and is suggested as a model for the successful and rapid dissemination of genetic information into routine clinical care in other conditions.en
dc.language.isoengen
dc.publisherClinical Medicineen
dc.relation.urlhttp://www.ncbi.nlm.nih.gov/pubmed/24715120en
dc.titleTen years of the national genetic diabetes nurse network: a model for the translation of genetic information into clinical careen
dc.typeJournal Articleen
dc.identifier.journalClinical medicineen
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