Ethical issues and best practice in clinically based genomic research: Exeter Stakeholders Meeting Report.

2.50
Hdl Handle:
http://hdl.handle.net/11287/620041
Title:
Ethical issues and best practice in clinically based genomic research: Exeter Stakeholders Meeting Report.
Authors:
Carrieri, D; Bewshea, Claire M.; Walker, Gareth; Ahmad, Tariq; Bowen, W; Hall, A; Kelly, S
Abstract:
Current guidelines on consenting individuals to participate in genomic research are diverse. This creates problems for participants and also for researchers, particularly for clinicians who provide both clinical care and research to their patients. A group of 14 stakeholders met on 7 October 2015 in Exeter to discuss the ethical issues and the best practice arising in clinically based genomic research, with particular emphasis on the issue of returning results to study participants/patients in light of research findings affecting research and clinical practices. The group was deliberately multidisciplinary to ensure that a diversity of views was represented. This report outlines the main ethical issues, areas of best practice and principles underlying ethical clinically based genomic research discussed during the meeting. The main point emerging from the discussion is that ethical principles, rather than being formulaic, should guide researchers/clinicians to identify who the main stakeholders are to consult with for a specific project and to incorporate their voices/views strategically throughout the lifecycle of each project. We believe that the mix of principles and practical guidelines outlined in this report can contribute to current debates on how to conduct ethical clinically based genomic research.
Citation:
Ethical issues and best practice in clinically based genomic research: Exeter Stakeholders Meeting Report. 2016 J Med Ethics
Publisher:
BMJ
Journal:
Journal of Medical Ethics
Issue Date:
27-Sep-2016
URI:
http://hdl.handle.net/11287/620041
DOI:
10.1136/medethics-2016-103530
PubMed ID:
27677925
Additional Links:
http://jme.bmj.com/cgi/pmidlookup?view=long&pmid=27677925
Note:
This article is freely available via Open Access. Click on the Additional Link above to access the full-text via the publisher's site.
Type:
Journal Article; Meetings and Proceedings
ISSN:
1473-4257
Appears in Collections:
Gastroenterology; 2016 RD&E publications

Full metadata record

DC FieldValue Language
dc.contributor.authorCarrieri, Den
dc.contributor.authorBewshea, Claire M.en
dc.contributor.authorWalker, Garethen
dc.contributor.authorAhmad, Tariqen
dc.contributor.authorBowen, Wen
dc.contributor.authorHall, Aen
dc.contributor.authorKelly, Sen
dc.date.accessioned2016-10-19T09:14:58Z-
dc.date.available2016-10-19T09:14:58Z-
dc.date.issued2016-09-27-
dc.identifier.citationEthical issues and best practice in clinically based genomic research: Exeter Stakeholders Meeting Report. 2016 J Med Ethicsen
dc.identifier.issn1473-4257-
dc.identifier.pmid27677925-
dc.identifier.doi10.1136/medethics-2016-103530-
dc.identifier.urihttp://hdl.handle.net/11287/620041-
dc.description.abstractCurrent guidelines on consenting individuals to participate in genomic research are diverse. This creates problems for participants and also for researchers, particularly for clinicians who provide both clinical care and research to their patients. A group of 14 stakeholders met on 7 October 2015 in Exeter to discuss the ethical issues and the best practice arising in clinically based genomic research, with particular emphasis on the issue of returning results to study participants/patients in light of research findings affecting research and clinical practices. The group was deliberately multidisciplinary to ensure that a diversity of views was represented. This report outlines the main ethical issues, areas of best practice and principles underlying ethical clinically based genomic research discussed during the meeting. The main point emerging from the discussion is that ethical principles, rather than being formulaic, should guide researchers/clinicians to identify who the main stakeholders are to consult with for a specific project and to incorporate their voices/views strategically throughout the lifecycle of each project. We believe that the mix of principles and practical guidelines outlined in this report can contribute to current debates on how to conduct ethical clinically based genomic research.en
dc.languageENG-
dc.publisherBMJen
dc.relation.urlhttp://jme.bmj.com/cgi/pmidlookup?view=long&pmid=27677925en
dc.rightsArchived with thanks to Journal of medical ethics. This is an Open Access article distributed in accordance with the terms of the Creative Commons Attribution (CC BY 4.0) license, which permits others to distribute, remix, adapt and build upon this work, for commercial use, provided the original work is properly cited. See: http://creativecommons.org/licenses/by/4.0/en
dc.subjectWessex Classification Subject Headings::Oncology. Pathology.::Geneticsen
dc.subjectWessex Classification Subject Headings::Gastroenterologyen
dc.titleEthical issues and best practice in clinically based genomic research: Exeter Stakeholders Meeting Report.
dc.typeJournal Articleen
dc.typeMeetings and Proceedingsen
dc.identifier.journalJournal of Medical Ethicsen
dc.description.noteThis article is freely available via Open Access. Click on the Additional Link above to access the full-text via the publisher's site.en
dc.type.versionIn press (epub ahead of print)en

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